Saturday, June 11, 2011

More about Jonathan and his heart

I figured I'd better get this done tonight before we get busy with tomorrow's activities. I'm excited to see Elijah's birth parents who are coming to see us tomorrow. :-)

Ok, Jonathan's heart. The doctor said today that he has an open oval window, or a PFO I believe, a hole in his heart. This is one of the heart defects he was listed with and none of the doctors here seemed to be too worried about it. From what I gathered it can cause problems if it is large, but most often closes on his own. Ok, good. She said today that they were going to schedule surgery for him in May, but the cardiologist here wanted him to gain more weight first. I thought that was funny since he is so heavy already, but I'm glad they didn't do it. In June, just a couple weeks ago, he was back to the cardiologist and he said he should come back in 6 months for a check-up. YAY!!! It was the end of April that I asked you all to start praying for his heart. I believe those prayers are being answered! Praise the name of Jesus!!!!

In other health issues besides his current eye infection, he's never been sick enough to be sent to the hospital, so that's pretty healthy. I think that's about it for health issues. He has a rash on the back on the back of his neck/back but it just looks like prickly heat to me.

His picture definitely does him justice in the weight department! :-) He is one chunky lil' monkey! We didn't get a current weight on him, but we think he is heavier than our petite 20 mo old Rachel who is just over 20#. I have some 12 mo clothes here that I'll have to bring in next week to try on him. It takes lots of will power to not squeeze his cheeks and thighs!  Pat's aunts are going to love him. :-)

Developmentally, of course they told us he is delayed. No surprise there. Physically, he is not sitting up yet on his own, and even sometimes has a floppy head. He is reaching out to grab toys and puts them in his mouth to chew on them, so that was good to see. Lots of teeth to come in yet, as he only has the two bottom ones. I don't think that is totally unusual for kids with Ds though. Someone feel free to correct me if I'm wrong. I'm sure non-ideal nutrition is a part of that too.

I was pleasantly surprised to hear that he was eating baby food from a spoon though, along with a bottle too I'm sure. The doc said he does not really like to eat, but needs "encouragement" to do so. So, we'll see how that all works out. We will definitely ask to see what he is eating/drinking before we leave with him.

I think that's about it. He's had no visitors since he's come to the orphanage. :-( I highly doubt we'll be meeting his birth family, but that's ok. I'm thrilled we are able to give Elijah that gift to be in contact with his bio parents.

Thanks again for your continued prayers. Please pray for everything to go smoothly on Tuesday with the paperchasing. Thanks!!!!

3 comments:

summer said...

Yes, Praying, Praying, Praying!!! So relieved about his heart!! This is all just so AWESOME!!!! And that you are going to meet with Elijah's birth parents - WOW!!! I have to be honest, I am still making myself crazy thinking about you guys in that tiny train closet - how in the world did you do it???? LOL - I didn't even know that was an option???? Oh My!!! You guys sure are good at taking "what ever comes your way"!! I have learned so MUCH for YOU!!!!!! And will continue to do so I know!!!!

Rochelle said...

Great news on his pfo! WOO HOO! Will keep praying that it has closed and he never needs surgery.
Excited for your guys to meet with Elijah's birth family, what a blessing you are to them.
Oh, and I am glad God handpicked Jonathan for your family, He always knows what is best!

Leah Spring said...

Yeah, PFO's often aren't repaired here until age 3 or 4. Also, the "needing encouragement to eat" thing. VERY OFTEN EE caregivers mistake a strong tongue thrust for disinterest in eating, since the thrust is pushing the food back out of the mouth. Yes, late erupting teeth is very normal for a baby with DS (Angela didn't get her first tooth until 16 months, and it was a molar) and they also don't seem to have any particular oder in which they erupt. Missing teeth completely is also very common. Angela is missing 5 adult teeth, all molars on one side, and Axel is missing four adult teeth.